As Trigeminal Neuralgia is often considered a condition that affects older people, some of the issues that young people with facial pain face on a daily basis can differ from those of the older generation. Founded in 2011, the Young Patients Committee (YPC) strives to give a voice to the needs of young patients and raise awareness by dispelling the myth that TN does not affect young people.
How We Help
Through the YPC Facebook page, we share articles of interest to young patients and provide a forum for support. The YPC participates in FPA conferences with forums designed specifically for young people, and we publish an article in each edition of the FPA Quarterly. Finally, we spearhead our fundraising initiatives on Zazzle and CafePress, where we raise funds with TN-related merchandise that helps raise awareness.
The Young Patients Committee (YPC) assists in fulfilling the mission of the Facial Pain Association by representing the interests of neuropathic facial pain patients under the age of 40.
The YPC will make recommendations to the Board of the FPA concerning issues that are of concern to the younger generation and will develop events, opportunities, and initiatives on behalf of young patients and their families.
The YPC aims to fulfill its mission by:
Providing support for young patients and their families
Advocating for young facial pain patients
Raising awareness about facial pain
Engaging with the TN community
Fundraising for programs that benefit young people with facial pain and the FPA as a whole
YPC Board of Directors
The YPC Board of Directors is comprised of seven TN patients, ranging in age from 18-39 from across the United States. Current members are:
Stephanie Blough, Ohio
Ellie Eichenlaub, New York
Rachel Triay, Louisiana
Nick Foley, Illinois
Mandi Ginn-Franz, Illinois
Chris Nolze, New Jersey
Kenzie Winslow, Colorado
Have questions specific to the YPC? Email us: firstname.lastname@example.org
MEDICAL DISCLAIMER: Please note that the Young Patients Committee of FPA’s blogs and social media platforms are intended to convey general educational information and support, and should not be relied upon as a substitute for professional healthcare advice. The Young Patients Committee is comprised of fellow patients, not medical professionals.