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Motherhood and TN

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MaryEllen’s Story Here’s the thing about motherhood; in all honesty, being a mom is the hardest job you will ever have. Every mother wants to be able to look back with a sigh of relief and realize she raised a child who is happy, healthy, and makes a positive impact on the world. As a …

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Tips for Parents of K-12 Students

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Does My Child Need an IEP or 504 Plan? In the US, an IEP is an Individualized Education Plan (IEP), mandated by the Individuals with Disabilities Education Act. A child with facial pain will fall under the category “Other Health Impairments (OHI)”. The IEP describes the goals that the IEP team (including parents) have set …

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Caregiver Tips

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We on the YPC reached out to some of the caregivers in our network for their advice on how to best help TN patients and other caregivers. Several common themes emerged from their testimonials, and we agree! The most common tips we’ve heard are: Listen Trigeminal neuralgia is an invisible illness, so you won’t always …

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Traveling with Facial Pain

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Many young patients find themselves traveling often for pleasure or business. Traveling by either car or plane can aggravate some patients’ facial pain. Some patients may also find themselves seeking treatment in an unfamiliar hospital. Being proactive can help you get treatment (if needed) faster, or simply make sure your travel plans go smoothly. 1) …

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Working When You Have TN

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First, you will need to assess if you can continue to work as you did prior to your illness. If not, you can… Ask your employer for some changes to accommodate your TN Take a short-term leave (either through a work leave policy, the Family Medical-Leave Act (FMLA), or both) for treatment, surgery, or until …

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Mental Health and TN

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Mental health is often described as a person’s overall emotional and psychological condition.  Said differently, it’s the ability to maintain psychological well-being while satisfactorily adjusting to society and the ordinary demands of life. Those individuals facing chronic physical illness may find it difficult to maintain good mental health.  They may also find themselves subject to …

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Emergency Room Visits

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1) Have your list of medications written down so you do not have to speak. 2) Get a letter from your pain management doctor or neurologist documenting that you are formally diagnosed with TN. 3) If you are unhappy the way you were treated (or were not treated): contact the hospital’s patient representative and let …

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Navigating Health Insurance Policy

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Pre-authorization for Medications Insurance companies will at times have pre-authorization requirements for brand name medications or high cost medications. In order to be approved, your physician may need to complete lengthy paperwork documenting your need for that medication. Reasons could include: failure of previous medications in that class or FDA non-approval for off-label use. The …

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Pregnancy and Parenthood

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Pregnancy and trigeminal neuralgia can be an especially challenging combination. Below are some tips from one TN patient on how she survived her pregnancy and the first few years of childhood while managing her pain. Pregnancy The physical and emotional energy required to battle TN can make it a daunting and scary time for someone …

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